SeanOKelly.us

Ending the R-Word

With World Down Syndrome day approaching, I felt that it was appropriate to share and promote a movement that is aiming to stop derogatory speech towards individuals with intellectual disabilities. It’s called “spread the word to end the word” and the word is retard.  This word is so common place in many people’s everyday speech […]

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Hannah, a Flower, and a Homless Man

There is a line in a third day song about seeing someone in need and instead of helping, keeping your resource to yourself and telling that person you will pray for them. I am ashamed to admit that this is exactly what I did the other day. As I was leaving Safeway with Abby and […]

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The Wiggles; The Original P90X

As the ball dropped and we counted down to a new year, many of us counted down to the begging of a resolution for a new us. I’m not sure what the statistics are on different new years resolutions but I feel confident that weight loss and better health are among the top of the […]

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Self Worth

It is good to begin blogging again! In contrast to “potty treat” or “PICU bathroom”which I  have moved to this site in case you want to read about our adventures in the Kaiser Rosevile PICU, this post may be a bit heavy but it was what was on my mind today. Remembering that Sean and […]

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She’s Extraordinary

I have no doubt that Gods hand is on Chloe in exceptional ways and that he has amazing plans for her life. This said, there are still days, thankfully few and far between, that are very hard for me as her mother. Today was one of those days. I went to pick her up from […]

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Oh Happy Day

I thought the day would never come. Literally, this morning I thought the day would never come when we would get to say good bye to the PICU. Abby’s doctor told me he wanted to keep her and watch her until she stopped having any desats or drops in her heart rate. “It may be a while still” were his […]

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Elephant in the Room

Let’s talk about the elephant in the room. In our families case, the two elephants in the room. The first elephant was the worst. He was dark and mean and wanted to stomp and crush us under his huge unforgiving foot. He was called Code Blue. No one wanted to acknowledge him but for the […]

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MMMMmmm Let’s Eat

Spaghetios? Remember these? the nutritionally void but supper delicious treat we all loved as kids. Well apparently my tastes have changed because they are disgusting as an adult. There is a tomato soup if it can be called that, which tastes like a watered down version of the sauce that spaghetios swim in. yuck. What […]

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ICU Psychosis

The first Time Abigail was admitted to the PICU, four days into our stay, her doctor warned Sean and I that we could develop ICU psychosis, a condition that until three weeks ago I had never even heard of. Let me reiterate that was after four days, today is day 20!!! I am now convinced […]

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Potty Treat

I know I said I would tell you about ICU psychosis today but there is a larger more pressing issue, The PICU bathroom… I have spent far too much time in this room and now have a mental map of all the mysterious stains on the floor. I am trying not to let myself wonder […]

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